Data protection of research subjects
The data will be pseudonymised. Pseudonymisation means the processing of personal data in such a manner that the personal data can no longer be attributed to a specific person without the use of additional information. Such additional information must be kept carefully separate from personal data.
The data on the genome will be summarised as a risk score describing the hereditary risk of a particular disease or other health-related factor. Although each person’s genome is unique, individuals cannot be identified based on their risk score.
If you have participated in the FINRISK 1992–2012, Health 2000/2011 or FinHealth 2017 studies by giving a sample and would like more information, the public notice can be found here.