Utilisation of genetic data and description of the register data to be combined
For the purpose of the study, polygenic risk scores are combined with data from the population register. We have access to Statistics Finland’s population registers, which collect information on the socio-economic factors, income, family relationships and living conditions of the research subjects and their families. In addition, the research data includes register data from THL and Kela, which contain information on morbidity and the use of services and benefits at different stages of the research subjects’ life cycle. The combined data available to researchers is pseudonymised.
A detailed description of the combined register data can be found in the privacy notice of the research.
Below is a graphic model of the compilation and processing of the research data. The data is pseudonymised, and the research team will have access to it only through a highly protected Fiona environment.